Update January 2003: We can't believe 2002 is over already! What a year it was for our little guy. We were told by Dr. Cotton in April that we could proceed with the reconstruction surgery (LTP) in the summer. We were both scared and excited. August 5th was the big day. He made it thru surgery with flying colors and we were in the hospital for 5 days. He had the stent removed on Sept. 6th and then Dr. Cotton took another look in Oct. and Dec. In between those two scopes, Evan finally was able to tolerate the Passy-Muir; what a wonderful experience it was to hear him laugh and cry! He has a very quiet voice but its music to our ears. We got the news we had been waiting for on Dec. 13th (believe it or not) the airway looks good and we're scheduled for a 48 hour capping trial down in Cincinnati on 1/21/03. Along with all of this, he is now walking (Christmas Eve)!! He also got a Mic-Key button in Sept. and is taking almost all his nourishment by mouth. We are working with the feeding team in Cincinnati as he is not eating age appropriate foods-chewing is an issue, but he's trying and he's come a long way as far as what he'll eat. We still go to PT/OT but not as often and he's started weekly speech therapy, so we're kept very busy!!
We also went on our first vacation in Feb. 2003 with the help of Grandma and Grandpa. What alot of work that was but it was worth it. The picture above is Evan with my dad-I will never forget that vacation.
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