Here we are-2008. I didn't do a very good job of posting beyond my first entry in September but it's a new year, right? Time to start again. What I'm going to do is try and chronicle Evan's life starting with his birth back in 2001 with the help of entries I made on a trach website and go from there. So, here we go......................
Evan was born 7 weeks early on January 18th, 2001. I developed pre-eclampsia at 30 wks and was then hospitalized for 3 days prior to my emergency c-section. The pregnancy had gone smoothly up until then and as far as we knew, we'd only be dealing with a premature baby. We were wrong. They rushed him from the Ohio State University Medical Center to Children's Hospital here in Columbus OH (where we live) within the first hour of when he was born. He was born at 11:41 a.m. and was in the OR by 3 p.m. to put a g-tube in his stomach. Evan was born with TEF/EA which repaired when he was 13 days old (on January 31st) as well as a laryngeal web. Oh, and an extra thumb which was removed this year. They could barely intubate him that first day but by the grace of God the doctors were able to do it. Long story short. After 6 wks in the NICU, they did decide to trach him (February 26th) since he was in such distress while breathing on his own. Heliox helped but we knew he couldn't go home on it. It was a hard day but it gave us comfort to see him breathing so easily after it was done. We brought him home on March 9th, 2001 and since then, we've only spent 1 night in the hospital! He's 14 months now, sitting up on his own but we are working with a physical therapist for other gross motor delays. We are working with Dr. Cotton's team in Cincinnati and hope this year to begin the reconstruction surgery. Evan is a healthy, happy, bright little boy and the light of our lives!
Obviously, this has only taken us to the winter of 2002. More to come.
Evan was born 7 weeks early on January 18th, 2001. I developed pre-eclampsia at 30 wks and was then hospitalized for 3 days prior to my emergency c-section. The pregnancy had gone smoothly up until then and as far as we knew, we'd only be dealing with a premature baby. We were wrong. They rushed him from the Ohio State University Medical Center to Children's Hospital here in Columbus OH (where we live) within the first hour of when he was born. He was born at 11:41 a.m. and was in the OR by 3 p.m. to put a g-tube in his stomach. Evan was born with TEF/EA which repaired when he was 13 days old (on January 31st) as well as a laryngeal web. Oh, and an extra thumb which was removed this year. They could barely intubate him that first day but by the grace of God the doctors were able to do it. Long story short. After 6 wks in the NICU, they did decide to trach him (February 26th) since he was in such distress while breathing on his own. Heliox helped but we knew he couldn't go home on it. It was a hard day but it gave us comfort to see him breathing so easily after it was done. We brought him home on March 9th, 2001 and since then, we've only spent 1 night in the hospital! He's 14 months now, sitting up on his own but we are working with a physical therapist for other gross motor delays. We are working with Dr. Cotton's team in Cincinnati and hope this year to begin the reconstruction surgery. Evan is a healthy, happy, bright little boy and the light of our lives!
Obviously, this has only taken us to the winter of 2002. More to come.
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