Monday, September 5, 2011

Bye Dad, I'll see you tomorrow. Love you.

Those were the last words I said to my dad.  Labor Day, Sept.5th, 2005 at about 6:00 p.m.

Sunday, August 28, 2011

My heart is full

God, I love my kid.......but he kills me with number 14.  He's been to the west coast, New England, NYC, Florida, etc. yet he says he's traveled to PA!!

Friday, August 26, 2011

The end of elementary school




I'm really not sure how this has happened. How did he go from kindergarten to fifth grade? I'm full of emotions.  Excited that my boy is growing up and becoming more independent.  Sad that my boy is growing up and becoming more independent.  I miss not being number one in his life.  I know it's a good thing but it hurts my heart nonetheless. So now we have begun the beginning of the end of the elementary years.  Sigh.........

Tuesday, August 9, 2011

Off the board!


After 2 years of group lessons and 3 years of private lessons, Evan is finally confident enough as a swimmer to go off the diving board! I'm sure I've already written about the fact that Evan has never done anything when people have expected to him to.  Eating, crawling, walking, potty training, riding a bike.....you name it.  So, he's done really well this summer in the pool and today he decided he was ready.  His swim teacher thought it was a good idea and so off he went! Mike got a video on his phone so hopefully I'll be able to post it because it's priceless.  The look on his face was one I'll remember forever.  

Wednesday, July 27, 2011

Mike's dad

Mike reminded me that today is the anniversary of his dad's death.  July 27th, 1978.  His dad was diagnosed with MS when his mom was pregnant and 10 years later he was gone. So, Mike was only 10 years old when he lost his father. Of course I immediately thought of Evan.  Yes, I look at him and think he's growing up but in all honestly he's still a little boy. No little boy or little girl should lose a parent at age 10.  It just breaks my heart to think of Evan going through that.

Friday, July 8, 2011

Thursday, July 7, 2011

Our Life with Evan

Our Life with Evan

A fellow EA/TEF mom started a blog called Bridge of Hope, a place to support the treatment and research of esophageal atresia/tracheoesophageal fistula and the families of EA/TEF children. I originally wrote this for our NICU newsletter at work and thought I would submit it for the blog.